Archive for October 24th, 2010|Daily archive page

The Challenging life of a young man with CP, Neil Barron.

In STEM CELLS IN THE NEWS on October 24, 2010 at 9:09 pm

Neil’s mother, seven months pregnant, was in a serious car accident which caused Neil’s early birth and left her severely crippled.  Born two months prematurely, Neil weighed only 3 pounds.  Because his respiratory system was not yet fully developed Neil was placed in an incubator. He stopped breathing on three separate occasions during his month long stay in the neo-natal care unit. It was obvious that this small baby wanted to live and he fought the odds to survive.

At the age of 2 years Neil had a difficult time crawling and he wasn’t gaining weight.  He was diagnosed with mixed cerebral palsy and was the size of the average 10 month baby.  At 5 years, Neil was struggling to walk as his grandparents walked behind him and kept him from falling.  For nine consecutive months, doctors had a series of casts on Neil’s legs to straighten them. When the final cast was removed, Neil never walked again.

Neil was not accepted in the public school’s kindergarten program in Alabama, so his grandmother enrolled him in the Calvary Christian School’s kindergarten program in Phenix City.  Neil’s grandmother took him to school everyday in a stroller, as he looked more like a 3 year old than a 6 year old.

For grades 1 to 3, Neil was back in public school, but now he was in special needs classes which was helpful for his physical difficulties.  Neil maintained an A+ average from grade school through high school.

Neil’s thirst for knowledge and his quest to be the best he could be was an increasing struggle as his body slowly deteriorated. He is a quadriplegic with full body involvement, which means his head and neck are affected. He has limited use of his left hand and the extension of his arm. He has full use of his right hand and right arm. The muscles in his legs are too weak to support his body weight.  If he tries to stand his entire body shakes and he falls to the ground and is unable to get up on his own. He has problems with visual scanning of both eyes, which makes it difficult to read a paragraph of words.

Knowing Neil’s ambitions and thirst for knowledge, his grandparents helped him go to college. Neil received a scholarship to Chattahoochee Valley Community College. The college was not set up for someone with Neil’s disabilities so his grandfather took him to school everyday and stayed in class with him to help him through the day. Neil graduated from junior college Suma Cum Laude with an Associates degree in Art and a 3.8 GPA. He went on to Troy University, with a major in psychology and maintained straight A’S. Near the end of the first year his grandfather died, and Neil has been unable to continue his education.

Neil has continually searched for a treatment or someone to help him improve his quality of life. He has researched to find something to help his deteriorating body, he started reading everything he could find on stem cells, as that seemed promising for the future. The problem being, how far off is the future?. … For Neil, his grandfather had died, his grandmother now the sole person left to care for Neil is 83 years old and Neil’s body is slowly deteriorating.

Neil’s search led him to an article about a toddler in Florida, Cameron Petersen, who received umbilical cord blood stem cells for optic nerve hypoplasia. From all the information Neil gathered he discovered that this little blind boy could now see and his health had improved as a result of the stem cell treatment. Upon further research, while looking for more information on the most qualified facilities in the world.

Neil read information on several web sites about patients’ improvements after receiving umbilical stem cell treatments. He also read that many of these patients were getting together to share information about their treatments with the public at various venues around the country as part of a Stem Cell Awareness program.

Now age 29, Neil contacted Carol and asked her to help him!…. As an advocate, she helps people with their needs. The regenerative capabilities of umbilical cord blood stem cells have given patients with cerebral palsy significant improvements and a better quality of life. Neil desperately wants to be one of these as his time is running out…. Neil passed the first big test earlier this year when he was accepted for treatment, scheduled as follows:

*Admission date: December 28, 2010 *Discharge date: August 28, 2011

*Additional notes: Patient will be traveling with his grandmother. The patient will be staying in the hospital with his grandmother for eight months.  He will receive the first round of six injections in the first month. He will receive physical therapies, 6 days per week for the following 6 months. He will receive the second round of six injections in the eighth month.

Note from DM:

Now that you’ve read Neil’s story, you know how much he needs our help.  Just weeks away is not a lot of time, but I know we can make a significant change in Neil’s life if we join together to help him.

We can give Neil the chance to live his life in a meaningful way.  We can give Neil the same benefits other cerebral palsy patients have enjoyed from this stem cell treatment.

Neil has done everything right, but his latest fight needs our help.  With his treatment just weeks away, there’s no time to spare to raise the funds he needs now.

So much is riding on the outcome of our efforts,

Please donate what you can.  Together we can do this!  Every donation will help in this important cause!  Neil is counting on us to come through for him!

Thank you for your support.

Please Donate now by clicking this link, which will take you to Stem Cells for Hope, a 501(c)3 nonprofit organization:

Click here to donate http://www.stemcellsforhope.org/



%d bloggers like this: